Mike and Cam interviewed Dr. David Thoele, a Pediatric Cardiologist at Advocate Children’s Hospital. In part 1, Dr. Dave talks to us about the struggles that he and his daughter encountered while getting diagnosed with celiac, the struggle to find safe gluten-free food options in the mid-nineties, and how both of their diagnoses were by no means a “straight line.” He shares with us some of his frustrations with what is viewed as the “gold standard” in celiac testing and how there might be some “grey area” to folks who are not able to get a traditional celiac diagnosis.
Mike and Cam put the NIMA gluten detection device through its paces, testing out “gluten free” fast food and even a paintball! The results are surprising! They give their first thoughts on seeing the machine in action and speculate on the ways that this type of technology can be a real game changer for the community.
Mike and Cam are pleased to be joined again by Alice Bast, Founder and CEO of Beyond Celiac. In part 1 Alice talks with us about the brand new launch of the Go Beyond Celiac digital community. This is an exciting, first of it’s kind on-line hub that will connect our community, help us to find research studies we can participate in, and ultimately lead to positive changes in celiac research and our quality of life. You don’t want to miss hearing about this incredible new way of connecting with and becoming a part of this dynamic community.
As summer winds down, Mike talks to his nephew Sam about his recent gluten free adventures, including a trip up the East coast and Canada. Sam shares some of his top tips and you don’t want to miss talk of gluten free poutine!
Mike and Cam review on air the Starbucks gluten free breakfast sandwich. They also talk about the bizarre decision by Papa John’s Pizza to make a gluten free pizza that is NOT safe for those of us with celiac disease and gluten intolerance. This leads to a discussion about some of the restaurant chains that are doing a better job delivering on safe gluten free options.
Mike and Cam talk with guest Margaret Clegg about the ruling by the Pope that there needs to be at least some wheat in the communion wafer. Margaret has written a number of blog posts on the subject of faith and helps to illuminate some of the truths about what taking communion really means and how wheat is a part of that in biblical history. She also has suggestions for approaching clergy and how to have a meaningful discussion on the topic. Mike and Cam also talk briefly about their experience in navigating some of the Jewish traditions that involve gluten.
Mike and Cam are joined by Aleksa Hacker, Founder & Director of Mend Hunger. Mend Hunger is a nonprofit organization whose mission is to work with food pantries to provide gluten free and allergy safe food to those with a medically restricted diet and financial need. Aleksa tells us how she founded the organization, what they do, and what each of us can do in our own communities to help those in need.
Join Mike and Cam for a fascinating, candid talk with Dr. Edwin Liu, pediatric gastroenterologist and the Taplin Endowed Chair for Celiac Disease at Children’s Hospital, Colorado. We discuss Dr. Liu’s groundbreaking research that shows the incidence of Celiac Disease is higher in the most recent generation of adolescents in the Colorado area than previously thought. Are we on the verge of a new “celiac epidemic?”
We also hear Dr. Liu’s thoughts on his approach to treating kids with celiac, and that it is often not a “one size fit’s all” diagnosis. Dr. Liu also shares his hopes and vision for the future for celiac diagnosis and treatment.
Mike and Cam share their strong views on the recent occurrence on a school trip at Colonial Williamsburg involving an 11 year old boy and his inability to be allowed to eat his gluten-free meal at one of the historic site’s Taverns. They also give their opinions about the lawsuit, the way that the pub and Colonial Williamsburg treated this boy and his father, and the response that people have had on social media (both good and bad).
Dawn Scheu, owner and professional trainer at Willow Service Dogs, returns to talk about a recent harrowing experience she had with a medication that she believed to be safe for her. In addition to talking about the need for more oversight on medications with allergens, we talk in detail about what goes into owning a service dog. Also, can you teach an old dog new tricks? Stay tuned as Dawn lets us know if Cam’s dog Lacy is a candidate for gluten detection work.