Part 2 of our Late Summer News and Notes features more great listener letters, including a few frustrating stories; one leading to multiple family members getting diagnosed, and a second from someone who is still searching for answers. We also report on a registry with way too many false negative celiac blood tests and a Beyond Celiac post showing that we are all in need of treatments in addition to the gluten free diet. Shout outs to our TCP Inner Circle and much more!
Mike and Cam reach into their mailbag and share some current events for Part 1 of late summer News and Notes. They share a listener’s unbelievable tale of restaurant misconduct that reminds the guys of the JD’s challenges at Colonial Williamsburg. Even worse is a story from Newsweek about a man whose sister crosses the line in his gluten free kitchen. Also a couple from Colorado known for pizza and so much more!
September 13th was National Celiac Awareness Day, which got us thinking things like “why is there both a day and a month devoted to celiac disease awareness?” So we decided it was a perfect time for another edition of “Stump Mike and Cam.” In this episode, the guys test their knowledge on celiac awareness topics. Play along with us at home and hope you learn something along the way. I know that we did!
Mike and Cam are excited to welcome Kendra Williams to the podcast. Kendra and her dog, Suki, have become fixtures on social media, sharing their adventures in gluten detection far and wide. Kendra explains how having Suki has changed her life, and illuminates the guys on both the positives and the challenges of having a gluten detection dog-a truly illuminating conversation.
You can also learn more about Kendra and Suki on Instagram, Facebook and TikTok @sukipwd and their website https://www.sukipwd.com/ and also on YouTube https://youtube.com/channel/
Marilyn Geller, CEO of the Celiac Disease Foundation (CDF) is back to join Mike and Cam to talk about some of the exciting work that they are doing. Learn more about CDF’s recent campaign for their ICureCeliac registry, how you can get involved to help find treatments, and hopefully an eventual cure for celiac disease. As Cam says, become a “Pioneering Patient!” In addition, Marilyn talks about the CDF’s efforts to communicate with the FDA to improve their gluten free labeling of products.
The conclusion of Mike’s summer road trip is filled with so many fantastic moments. The highlights include a visit with Gluten Free Dave and his awesome family, the magnificent and interactive City Museum in St. Louis, and a lesson on all things Abraham Lincoln in Springfield, Illinois. Of course there are many more gluten free finds along the way as well!
It’s summer road trip time for Mike and his family. While planning is usually key for this type of vacation, Mike is thrown a few early curveballs and he hits the road with some trepidation. Things improve quickly as some hidden gems start to materialize. Part 1 of this wild ride ends with Mike returning to a stressful college moment, but with the help of his trusty NIMA device and some amazing food, he makes it through with a new positive perspective.
Mike and Cam sit down with Jordan Clark, group leader of the GIG of Greater Oakland support group. Jordan shares his frustrating story of getting diagnosed with celiac disease while finishing college, and how his search for others trying to understand how to live a safe gluten free life led him to becoming an unlikely support group leader. We talk about the benefits to being part of this type of community, and Jordan shares his thoughts on the first steps to take if you are interested in starting a support group in your own area.
Mike and Cam are happy to welcome Kyle Dine, allergy educator and founder of Equal Eats. Kyle’s childhood was spent navigating his life with a number of life threatening food allergies, leading him to feel isolated in his early years. Kyle set out to make the world more accessible for everyone to eat safely no matter if they have allergies or celiac disease. His vision coupled with his passion to support the allergen and celiac community is truly inspiring!
Cam is back in Vegas, and this time he won’t be “rolling the dice” in hopes of getting safe food, because one of his travel companions is the NIMA sensor. Cam and his sister Peyton put the NIMA through its paces as the NIMA came through big time for him. Cam shares some challenging moments while eating out and educates us on how to really get the most out of using this clever and helpful device.