Mike and Cam are pleased to be joined by Becca Hawkins, founder of the brand new non-profit, Portland Celiac, whose mission is to build a more inclusive community for those affected by celiac disease and gluten intolerance in the Portland metro area. Becca talks about what inspired her to start Portland Celiac and some of the biggest hurdles that she has faced. She also discusses how local groups like hers can serve our community and ultimately make systemic changes to improve the lives of people with celiac and gluten sensitivities.
This week we look at what’s been happening in the world of gluten free labeling. It still feels like two steps forward and two steps back, but hopefully things are starting to change for the better. Also, Mike came across a person with a huge YouTube following who could use a little help understanding what organic and gluten free mean, and that there is actually a difference between the two.
Join Mike and Cam as they talk to Beyond Celiac’s Chief Scientific Officer, Dr. Marie Robert and get a sneak peak at Beyond Celiac’s upcoming 2nd Annual Research Symposium. They are doing exciting work to help bridge the patient/doctor gap and sponsoring research to find new treatments and therapies for celiac disease.
Mike and Cam weigh in on the latest information coming out about the Nima Sensor. They also discuss the reality that many gluten free replacements for foods can be quite unhealthy, while there is a lot of confusing information that is actually trying to sell gluten free foods as a “healthier alternative.”
Mike and Cam discuss Susan Cohan’s important new article in Gluten Free Living Magazine called “Extra-intestinal Symptoms of Celiac Disease in Children,” highlighting research that a larger percentage of children are exhibiting non-intestinal celiac symptoms than previously thought. Are “atypical” symptoms more the norm, but because many people do not exhibit classic symptoms, doctors are just not testing for celiac disease? We discuss what it would take to change the conversation in the public’s perception and within the medical community.
Mike took a family vacation and there were some gluten free highs and lows. The boys share some of their traveling tips when hitting the road. We also hear a quick update on Cam’s gluten detection training with his dog Lacy.
Mike and Cam are excited to be joined, all the way from Vietnam, by Carrie Veatch founder of “For Gluten Sake.” Carrie is a celiac who has traveled far and wide and her passion and mission is helping the celiac and gluten free world to navigate the sometimes murky waters while traveling abroad. Carrie’s latest project is compiling a comprehensive list of 100% gluten free restaurants around the world. You will not believe how many she has already added!
It’s back to school time and Mike and Cam are happy to be joined by Debbie Simpson. Debbie is an educator who, after her celiac diagnosis, became passionate about helping the education world understand the realities of celiac disease in the classroom. She wrote 2 versions of her book, Adam and Hailey’s Gluten Free Surprise, inspiring us to discuss some of the top strategies to keep your child healthy and happy in school.
Part 2: We talk about the frustration and issues that arise when only one parent supports a child on a gluten free diet. Also, a listener’s scary symptoms and finally finding the surprising cause of her gluten contamination. Thanks again for all the great contributions to the podcast. Please keep your comments coming!
We love our listeners! You, our devoted fans, have written us some amazing emails and we are sharing some of these today. Part 1: One listener shares how owning chickens can have adverse effects on your celiac disease (and possibly your sanity). Please keep your amazing emails and comments coming! Part 2 next week.