Author: The Celiac Project

Mike and Cam dive into Casey the College Celiac’s post, 13 “Harmless” Comments that Actually Hurt People with Celiac Disease. What follows is a spirited and entertaining discussion of these sometimes outrageous comments.

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This week the guys go deep into an interesting post by Janaki Jitchotvisut entitled ” 9 Myths about Celiac Disease…” published on the website “Insider”. You will hear which of the “myths” Mike and Cam strongly agree with and which they think need slightly more clarification. Next week in part 2 of this series, they talk about the post, 13 “Harmless” Comments that Actually Hurt People with Celiac Disease, by Casey the College Celiac.

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Mike and Cam are excited to be joined again by gluten free travel expert and blogger, Erin Smith. Erin talks about the steps that went into planning her completely gluten free wedding. In addition, Erin, Mike and Cam share their best tips for staying gluten free at these types of events.

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Mike and Cam discuss Willem Karel Dicke, a pioneer in understanding that the gluten free diet is the key to treating celiac disease.  In an article titled, “How Famine Under the Nazis Revealed the Cause of Celiac Disease,” we see for the first time, how this great doctor used the tragic situation of the famine in the Netherlands to begin to really understand CD. We also compare Dicke’s work to that of Dr. Sidney Haas who popularized the “banana diet” to treat celiac disease starting in the 1920s, and how that might ultimately still be holding the U.S. back.

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Cam gives an update on the latest developments with his dog Lacy’s gluten detection training. We find out what the biggest challenges to date have been and give more tips to listeners who are considering going down this road as well.

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Mike and Cam do a tequila blind tasting with 5 different tequilas and Mike tries to stump Cam with tequila trivia. They also talk about some fascinating and surprising facts about this fabulous gluten free spirit! Play along with the boys and tell us which ones are your favorites.

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Mike and Cam are excited to welcome Josh Schieffer to the podcast. In 2010 Josh, along with his wife Jayme, founded the Gluten Free Awards, an industry awards program designed to connect those with Celiac Disease to the best products and services. He has published several bestselling books and continues to be a Celiac advocate. We talk to Josh about how he got started with the awards and Buyers Guide and some of the challenges that they have faced to make sure that they bring our community the best information possible.

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Mike and Cam discuss a number of recent labeling issues and blunders, including a couple of product recalls in the U.S. and abroad. Gluten free labeling seems to be improving overall, but there is still work to be done. Thanks to Gluten free Watchdog (@GFWathchdog) for bringing these issues to the forefront. Also, Cam’s dog, Lacy, makes an interesting discovery during her gluten detection training.

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Mike and Cam ponder the results of a new Columbia University study that shows that people with celiac disease who are hypervigilent about their gluten free diet actually have a lower quality of life. While we are not surprised about these findings, we talk about how it relates to our own lives and work on solutions that can help all celiacs have a better quality of life overall. We also want to thank Beyond Celiac for publishing an article about the study, which we reference in the podcast.

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Mike and Cam are so excited to be joined once again by Dr. Maureen Leonard (previously on EP 43)*.  Dr. Leonard is involved in the groundbreaking CDGEMM study at Mass General and talks about the amazing progress of the study, as well as some other fascinating research that she has been involved in. Among the topics discussed is the fact that TTG might not be as accurate as we thought for followup care of celiac disease. You don’t want to miss this informative episode!

*Dr. Leonard is the Clinical Director of the Center For Celiac Research and Treatment at MassGeneral Hospital for Children (MGHfC) and an Instructor of Pediatrics at Harvard Medical School (HMS).

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